Some fun pictures of Ryan

Here are a few pictures from our trip to ND for Great Grandma's funeral.
Ryan and his favorite friend Walker (my cousin, Ryan wouldn't let him out of his sight!)

Ryan wearing Great Grandma's clip on earings!

All the snow that was at Great Grandma's house


So sweet- asleep on the way home

Christmas 2008

Ryan had a blast opening the many, many, many toys that he received! I don't think he can say he has a favorite- he is playing with everything! We had Christmas Eve at Grandma and Grandpa Best's house with Tyson and Jennie and Mikki and Brad. We ate lots and had a good time. Christmas Day we spent with Grandma and Grandpa Beehler and family. Ryan came home with more- I don't know where it is all gonna go! We ate lots there too!

Some sad news

Ryan's great grandma Huff died this morning in her sleep. We will miss her greatly, but find peace that she is in heaven watching over us. The funeral will be on Tuesday Dec. 30th. (pictures: Great Grandma Huff with Ryan for the first time, Great Grandma Huff's 80th birthday party)

Ryan had his AFO's made today

We took Ryan to get his AFO braces made today. They make a cast of his leg, cut it off and then make the brace from the cast. Ryan did really well with it and got to pick out the design he wanted to have on the braces. He picked one with helicoptors, tractors, and trucks on it with a blue background. He will get his braces Jan 2nd.

Ryan's neurologist appt.

Ryan has been off his anti-seizure med for 4 weeks now. He had an EEG done to make sure he has no seizure activity off of the med. His EEG came back normal. We talked to the neurologist also about doing genetic testing and he too felt it was a good idea- so we will be getting it done. Ryan doesn't have to see the neurologist until Aug 2009! Which as long as things go well, will be his 2 year seizure free anniversary!

Appt with Rehab Dr.

Ryan had his follow up appt today with Rehab at Gillette. Ryan has been going to physical therapy for 3 months now. He has improved in a few areas- able to jump, ride a bike, but continues to struggle with walking. He continues to walk with his toes pointed inward and on his toes- doesn't put his heel completely down. He has been wearing braces inside his shoes, but they don't seem to be helping him. So at the appt. we talked about getting him new braces called AFO's. They go all the way up to his knees. Ryan walks with his hips instead of his thigh muscles. The braces are to help him walk on his foot instead of his toes. The problem with him walking on his toes is that his calf musclses ares starting to get tight. We will have to watch him closely with the new braces so that he is not losing more muscle and that they aren't causing more hip problems. We also talked about Ryan having genetic testing done to better determine why his is having hypotonia. Hypotonia is usually a sign or symptom of something else. The Dr. feels that even though all his tests and come back normal, Ryan could have a central nervous system problem.

Ryan visits Santa

Ryan went to see Santa and Mrs. Claus on Saturday. They had breakfast with santa, crafts to make, coloring, santa's store, and a place to make and send a wish list. Ryan told santa he wanted a tractor. He had a good time.

Ryan's special "stickers"

Ryan got special tape put on today at physical therapy. He wears it until it falls off. He is doing really well with it so far. It helps strengthen/ support his muscles. He is still in toeing alot and walking on his toes to compensate. So, we are hoping this will "wake up" those muscles.