Tuesday, July 31, 2007
Ryan had his EEG today. We got up at 4 am and had to stay awake unitl 7:15 for the appt. He did really well. I won't find out the results until the end of this week. I haven't heard when the MRI is and I will be calling them today to find out what is going on with insurance.
Wednesday, July 25, 2007
We went to see a Pedi. at 11 and I am still a little numb about what we decided to do. Ryan will have an EEG and a MRI done. I am glad something is being done, but kinda scared at why it is being done. His Dr. is concerned about the type of seizures he has had and think we need to check things out some more. When Ryan has a seizure his eyes have gone up and to the left- this doesn't normally happen with a febrile seizure. She is also concerned with the onset of his seizures- usually with a febrile seizure the child is sick first- Ryan has not be sick until after his seizure. I am sad that Ryan will have to be sedated to have his MRI, but as a nurse who use to do the sedation, I know it is a routine easy thing to do. The clinic has to call me when the EEG is scheduled and the MRI has to be approved by insurance first, so I don't know when all of it will be done yet. If Ryan is to have another seizure lasting more than 2 minutes we are to call 911. I really hope we don't have to think about that. I felt very comfortable with this dr.- she sat and talked with me for almost an hour! Ryan is back to his usual self- going after the cats and messing up the house!
Tuesday, July 24, 2007
I will know more tomorrow hopefully when I take him to the pedi at 11am. He is finally acting like himself again- takes him 2-3 days to recover. I got out my ped nursing book and a couple other books I have and I am not as freaked out. But, I still have one big question and that is why is he having a seizure at such low temp.? Everything I read said that they don't usually have a seizure unless they are 102 or higher. Ryan was 99.2 and 100.4. Doesn't make sense. He had a rash on his tummy and neck last night, but that has gone away.
Friday, July 20, 2007
I went to work Friday at 2:30 and by 4pm my daycare lady was calling me with news I didn't want to hear. Ryan had his second seizure- febrile. I left work and brought him to the ER. Where we waited for 2 1/2 hours to before a doctor saw him! His temp. was 100.4 by ear at daycare. I gave him some tylenol before we left daycare. At the ER he was 99.2, but 2 hours later he was 100 again. Which isn't very high, but Ryan apparently has a very low tolerance. He still isn't 100% back to himself. The Dr. said he probably has something viral and if he has a seizure again I can just watch him at home- that I didn't have to bring him in. I don't know how I feel about all this. I know this is a common childhood thing, but I feel like it shouldn't be just brushed off like it is no big deal. I am worried about my little boy! I have been just taking him to family practice dr. , but tomorrow I am getting him a peds dr. I need to know that this is just a febrile seizure nothing else. They did no tests at the ER.