Bob the Builder Live

Ryan, Grandma Best and Mommy went to see Bob the Builder Live for an early birthday present to Ryan. He had a lot of fun and asks to go back and see it again. They were really strict about taking pictures- so I had to be sneaky and get a few quickly.

A Smart one!

We continue to work with Child link to assess where Ryan is at. Well, this is one smart little boy!!! He had his cognitive eval and blew us and the therapist away. He is doing things at a higher level than his age. We don't have the results back yet, but comments were made that he is doing things that not all kindergartners are able to do. I have to thank our daycare lady for this also- she has taught Ryan many things. Next week he has his fine and gross motor eval- which we know he will have more difficulty with.

Update on Ryan

Well, I haven't done this lately and I have heard that I need to. Ryan continues to do well in many areas. He is a happy, fun loving, energetic little boy (who is almost 3- how did that happen?). He talks non-stop, guess that is one thing he got from me! He learns new things everyday and continues to amaze us! He is eating and growing like crazy! He continues to go to physical therapy 2 times a week to work on areas that continue to be weaker. He has improved greatly from physical therapy already! Physical therapy works on his upper arm, trunk, and leg strength. He gets to do lots of fun things there and for the most part he likes going- somedays are better than others. He usually comes home tired. He is not liking his new braces right now and we are trying to improve that. He continues to be seizure free and off medication. We are working on potty training- somedays he does really well and others not so well. I don't believe his hypotonia has anything do with this, but it can cause problems in this area. I have found a hypotonia website that has given me a lot of helpful info and support. Ryan won't be having his genetic testing until March (soonest he can get in) and the results can take 4-8 weeks to get back.

Child Link Meeting

We met with Child Link today (Early Childhood Intervention) to see what other ways we can help Ryan. This service is through the school system. We met with a nurse today, who took information about Ryan's health history. She then goes back to the rest of the team members (physical, speech, behavioral, etc therapists) and they decide what Ryan needs are. He will be evaluated on his development next Tuesday and the following Tuesday will have a meeting with the nurse, developmental therapist and physical therapist to develop the best plan for Ryan.

Ryan's new braces

Ryan got his AFOs (ankle-foot orthotics) today. He so far is very excited about them.