Update

He has had a very good day- he has been able to rest and continues to get better. The dr. is thinking that he could possibly have his breathing tube out tomorrow evening or Sat. morning. Then he has to be okay for 24 hours with the tube out and he will get moved to a regular peds bed. Then he has to be strong enough to start eating again and back to himself. So, we will be here until next week, but we are making progress. I am just so glad that he rested today- yesterday it was 3-4 people holding him to the bed.

Code Blue

We had a scary morning today- they ended up calling a code blue. Ryan's steriods are starting to work and because of this he has lots of room around the breathing tube. So instead of the air going to his lungs it was leaking out into his mouth/stomach. His oxygen sats dropped (60's) and then his heart rate dropped (80's). He should be 94 and above for his oxygen and 130's for his heart rate. The called a code blue and then took out his breathing tube since it wasn't doing any good and started bagging him. Because he is sedated he takes some breathes, but not enough. Thankfully we are right next to the NICU and the NP came and put a new breathing tube back in very quickly. He is back to his normal/good vital signs and sedated. They all did a very good job and I was very happy to have the night nurse we had- she is excellent!

Update

First, THANK YOU all of you for all the well wishes and prayers! Ryan is about the same. He is starting to need more sedation and wakes up easily. He is very strong and takes 3-4 people to hold him still until they can give him more sedation. He pulled both IV's out- he had one in each hand and now has one in each foot. The neurologist came and we have started him on a low dose of anti-seizure med. He will be on this until we go home and then go to the Twin Cities to see a ped. neurologist who will repeat his EEG and decide if he needs to stay on the med. I am very tired- I have helped hold him down a lot.

Caringbridge site

Dear Friends and Family, I created a CaringBridge site to keep you up to date on Ryan Beehler. CaringBridge is a nonprofit organization that helps friends and families stay connected.You can visit Ryan's CaringBridge site at http://javascript%3cb%3e%3c/b%3E:ol(.If your e-mail program does not allow you to click on the above link, just copy and paste the address into your web browser's address (or URL) location.Please visit our CaringBridge site anytime. You can use the site to check in on Ryan, read the journal entries and send us messages by signing our guestbook. When you register with CaringBridge and sign our guestbook, you will automatically receive e-mail notifications each time our journal is updated. Or, you can subscribe to receive these notifications even before you sign the guestbook. (Of course, you can unsubscribe from these e-mail updates at any time.) Please print and save this e-mail for future reference.CaringBridge is a free, nonprofit web service that connects family and friends to share information, love and support during a health care crisis, treatment and recovery. http://javascript%3cb%3e%3c/b%3E:ol(

3rd seizure

I don't know how to even start this- so here goes.
2:30 am Tuesday August 14, 2007 Ryan has a fever and a bad cough
6:30 am Tuesday Ryan continues with his fever and cough- made Dr. appt
10 am Dr. appt. Ryan has the beginnings of Croup (where your upper airway swells- barky cough) She sends us home with a steriod to help open his airway
2:30 pm Ryan cries everytime he coughs and is having a harder time breathing- I am having a very hard time getting meds and fluids in him
4:30 pm I decide it is time to take him to the ER- I wait 5-10 minutes for my dad to get home from work to come with me
4:42 pm- Ryan start to seize and I call 911
Ryan had a seizure for 20 minutes- they gave him medicine to stop the seizure, but because of his croup he is having a very hard time breathing. In the ER they decide it is best to put in a breathing tube, sedate him, and help him breathe. So, we are in the ICU and Ryan continues to be sedated and on a ventilator. He had a good night and now we need the swelling in his upper airway to heal. The neurologist will come see him today and decide what needs to be done about his seizures. I am sick to my stomach trying to keep it together. Please keep us in your thoughts and prayers.

My perfect little boy!

Ryan's EGG and MRI are NORMAL!!!! So, his seizure were just febrile seizures and nothing else. I am so relieved! Thank you to everyone who kept us in their thoughts and prayers!

EEG

Ryan had his EEG today. We got up at 4 am and had to stay awake unitl 7:15 for the appt. He did really well. I won't find out the results until the end of this week. I haven't heard when the MRI is and I will be calling them today to find out what is going on with insurance.

Met with the peds dr.

We went to see a Pedi. at 11 and I am still a little numb about what we decided to do. Ryan will have an EEG and a MRI done. I am glad something is being done, but kinda scared at why it is being done. His Dr. is concerned about the type of seizures he has had and think we need to check things out some more. When Ryan has a seizure his eyes have gone up and to the left- this doesn't normally happen with a febrile seizure. She is also concerned with the onset of his seizures- usually with a febrile seizure the child is sick first- Ryan has not be sick until after his seizure. I am sad that Ryan will have to be sedated to have his MRI, but as a nurse who use to do the sedation, I know it is a routine easy thing to do. The clinic has to call me when the EEG is scheduled and the MRI has to be approved by insurance first, so I don't know when all of it will be done yet. If Ryan is to have another seizure lasting more than 2 minutes we are to call 911. I really hope we don't have to think about that. I felt very comfortable with this dr.- she sat and talked with me for almost an hour! Ryan is back to his usual self- going after the cats and messing up the house!

Update

I will know more tomorrow hopefully when I take him to the pedi at 11am. He is finally acting like himself again- takes him 2-3 days to recover. I got out my ped nursing book and a couple other books I have and I am not as freaked out. But, I still have one big question and that is why is he having a seizure at such low temp.? Everything I read said that they don't usually have a seizure unless they are 102 or higher. Ryan was 99.2 and 100.4. Doesn't make sense. He had a rash on his tummy and neck last night, but that has gone away.

2nd seizure

I went to work Friday at 2:30 and by 4pm my daycare lady was calling me with news I didn't want to hear. Ryan had his second seizure- febrile. I left work and brought him to the ER. Where we waited for 2 1/2 hours to before a doctor saw him! His temp. was 100.4 by ear at daycare. I gave him some tylenol before we left daycare. At the ER he was 99.2, but 2 hours later he was 100 again. Which isn't very high, but Ryan apparently has a very low tolerance. He still isn't 100% back to himself. The Dr. said he probably has something viral and if he has a seizure again I can just watch him at home- that I didn't have to bring him in. I don't know how I feel about all this. I know this is a common childhood thing, but I feel like it shouldn't be just brushed off like it is no big deal. I am worried about my little boy! I have been just taking him to family practice dr. , but tomorrow I am getting him a peds dr. I need to know that this is just a febrile seizure nothing else. They did no tests at the ER.